by Pharmaguapa | Feb 28, 2021 | Autoimmune Disease, hashimoto's, Patient centric, Rare disease, Social Media
Today is rare disease day so I thought I would share my personal experience. One of the reasons I am so passionate about working in rare disease is because of the experience I and my family have gone through. Churg Strauss Syndrome Years ago my mother got ill and got...
by Pharmaguapa | Feb 26, 2021 | Autoimmune Disease, General, hashimoto's, Patient centric, Rare disease, Social Media
It’s Rare Disease Day this weekend! Every year the end of February sees this day focused on rare diseases. The aim of the disease day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients’...
by Pharmaguapa | Feb 18, 2021 | Autoimmune Disease, General, hashimoto's, Patient centric
Next up on my content plan is a post about inspirational quotations. At first I thought this would be easy – the internet is after all full of inspirational quotes. However I wanted to make it meaningful and tie it back to life as an autoimmune patient. ...
by Pharmaguapa | Dec 1, 2020 | Autoimmune Disease, General, hashimoto's, Leadership
As we near the end of this second lockdown I find myself reflecting on my lockdown experience. I have heard from quite a few friends that they have found this second lockdown even harder than the first. Many people I know have struggled with mental health and...
by Pharmaguapa | Nov 12, 2020 | General, Patient centric, Social Media
Last week I read in an article that 72% of patients do not feel listened to by pharma. This is a very sorry state of affairs, but sadly does not surprise me. Whilst patients are the end users they are not seen as customers. Traditionally patients have not had a say...
