When a restaurant ignores your gluten allergy

I am very open about the fact that I have an autoimmune disease, Hashimoto’s, and I try to do my bit to help educate others about this disease, and other autoimmune diseases.  I feel as an educated patient, who works in digital health, I am well placed to do so and to a degree feelContinue reading “When a restaurant ignores your gluten allergy”

All I wanted for Christmas …

This time of year is often a time of reflection.  It is a time of thinking about what you really want for Christmas – what items go on that famous Christmas list.  What are the things you would really love Santa to bring you – and being Santa you can wish for whatever you want.Continue reading “All I wanted for Christmas …”

Uniting around #rarediseaseday

Today is #Rarediseaseday.   This is a day when patients, their carers, HCPs, governments, NGOs and industry unite in raising awareness around rare diseases.  I am presuming that people reading this post know what a rare disease is but if not Eurodis provides information around this. #Rarediseaseday is in my opinion a very important day.  ItContinue reading “Uniting around #rarediseaseday”

A patient’s point of view

I was recently involved in a workshop for a pharmaceutical product and one element we talked about was the emotional journey a patient goes on, and how digital tools played a role in that journey.  This really resonated with me as a patient. We are of course all patients at some stage or other, butContinue reading “A patient’s point of view”