All I wanted for Christmas …

This time of year is often a time of reflection.  It is a time of thinking about what you really want for Christmas – what items go on that famous Christmas list.  What are the things you would really love Santa to bring you – and being Santa you can wish...

Uniting around #rarediseaseday

Today is #Rarediseaseday.   This is a day when patients, their carers, HCPs, governments, NGOs and industry unite in raising awareness around rare diseases.  I am presuming that people reading this post know what a rare disease is but if not Eurodis provides...

A patient’s point of view

I was recently involved in a workshop for a pharmaceutical product and one element we talked about was the emotional journey a patient goes on, and how digital tools played a role in that journey.  This really resonated with me as a patient. We are of course all...