by Pharmaguapa | May 30, 2021 | Autoimmune Disease, hashimoto's, Patient centric, Social Media, Twitter
This week was International Thyroid Awareness Week (ITAW). Thyroid disease is massively under-diagnosed with over half of patients undiagnosed and aware they have a treatable condition. The symptoms of untreated thyroid disease can be debilitating and even fatal in...
by Pharmaguapa | Mar 21, 2017 | #sxsw, hashimoto's, Patient centric, Uncategorized
I am very open about the fact that I have an autoimmune disease, Hashimoto’s, and I try to do my bit to help educate others about this disease, and other autoimmune diseases. I feel as an educated patient, who works in digital health, I am well placed to do so...
by Pharmaguapa | Dec 29, 2015 | General
This time of year is often a time of reflection. It is a time of thinking about what you really want for Christmas – what items go on that famous Christmas list. What are the things you would really love Santa to bring you – and being Santa you can wish...
by Pharmaguapa | Feb 28, 2015 | Uncategorized
Today is #Rarediseaseday. This is a day when patients, their carers, HCPs, governments, NGOs and industry unite in raising awareness around rare diseases. I am presuming that people reading this post know what a rare disease is but if not Eurodis provides...
by Pharmaguapa | Dec 3, 2013 | Autoimmune Disease, Facebook, General, hashimoto's, Patient centric, Social Media
I was recently involved in a workshop for a pharmaceutical product and one element we talked about was the emotional journey a patient goes on, and how digital tools played a role in that journey. This really resonated with me as a patient. We are of course all...
