by Pharmaguapa | Feb 26, 2021 | Autoimmune Disease, General, hashimoto's, Patient centric, Rare disease, Social Media
It’s Rare Disease Day this weekend! Every year the end of February sees this day focused on rare diseases. The aim of the disease day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients’...
by Pharmaguapa | Nov 12, 2020 | General, Patient centric, Social Media
Last week I read in an article that 72% of patients do not feel listened to by pharma. This is a very sorry state of affairs, but sadly does not surprise me. Whilst patients are the end users they are not seen as customers. Traditionally patients have not had a say...
by Pharmaguapa | Sep 20, 2020 | Autoimmune Disease, hashimoto's, Patient centric, Social Media
I was on a call last week where I found myself giving input into a brand strategy not as strategy consultant but as a patient advocate. My day job is advising life science’s companies on how to engage with their customers using digital technology. This...
by Pharmaguapa | Nov 6, 2019 | Autoimmune Disease, Leadership, Patient centric
Those of you who follow me on Twitter will have seen that yesterday I attend the PM Society’s event on patient collaboration. I found it a well put together event with a good balance of presenters from all the main stakeholder groups (perhaps with the exception...
