by Pharmaguapa | May 30, 2021 | Autoimmune Disease, hashimoto's, Patient centric, Social Media, Twitter
This week was International Thyroid Awareness Week (ITAW). Thyroid disease is massively under-diagnosed with over half of patients undiagnosed and aware they have a treatable condition. The symptoms of untreated thyroid disease can be debilitating and even fatal in...
by Pharmaguapa | Mar 12, 2021 | Autoimmune Disease, hashimoto's, Patient centric
As part of Autoimmune Month I thought I would share some of my experience as a Hashimoto’s patient and what I call Hashimoto’s brain. Hashimoto’s is an autoimmune disease where the body attacks the thyroid, leading to hypothyroidism. Many people,...
by Pharmaguapa | Feb 28, 2021 | Autoimmune Disease, hashimoto's, Patient centric, Rare disease, Social Media
Today is rare disease day so I thought I would share my personal experience. One of the reasons I am so passionate about working in rare disease is because of the experience I and my family have gone through. Churg Strauss Syndrome Years ago my mother got ill and got...
by Pharmaguapa | Feb 26, 2021 | Autoimmune Disease, General, hashimoto's, Patient centric, Rare disease, Social Media
It’s Rare Disease Day this weekend! Every year the end of February sees this day focused on rare diseases. The aim of the disease day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients’...
by Pharmaguapa | Feb 18, 2021 | Autoimmune Disease, General, hashimoto's, Patient centric
Next up on my content plan is a post about inspirational quotations. At first I thought this would be easy – the internet is after all full of inspirational quotes. However I wanted to make it meaningful and tie it back to life as an autoimmune patient. ...
by Pharmaguapa | Dec 1, 2020 | Autoimmune Disease, General, hashimoto's, Leadership
As we near the end of this second lockdown I find myself reflecting on my lockdown experience. I have heard from quite a few friends that they have found this second lockdown even harder than the first. Many people I know have struggled with mental health and...
