by Pharmaguapa | Mar 23, 2021 | #sxsw, Artificial Intelligence, Patient centric, Social Media
It is that time of year again – it is SXSW time. I first attended SXSW in 2015. It was so impactful I had a mini epiphany and quit my job the day I got back into the office. My first SXSW was truly amazing and I saw some of the most inspirational tech...
by Pharmaguapa | Mar 12, 2021 | Autoimmune Disease, hashimoto's, Patient centric
As part of Autoimmune Month I thought I would share some of my experience as a Hashimoto’s patient and what I call Hashimoto’s brain. Hashimoto’s is an autoimmune disease where the body attacks the thyroid, leading to hypothyroidism. Many people,...
by Pharmaguapa | Feb 28, 2021 | Autoimmune Disease, hashimoto's, Patient centric, Rare disease, Social Media
Today is rare disease day so I thought I would share my personal experience. One of the reasons I am so passionate about working in rare disease is because of the experience I and my family have gone through. Churg Strauss Syndrome Years ago my mother got ill and got...
by Pharmaguapa | Feb 26, 2021 | Autoimmune Disease, General, hashimoto's, Patient centric, Rare disease, Social Media
It’s Rare Disease Day this weekend! Every year the end of February sees this day focused on rare diseases. The aim of the disease day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients’...
by Pharmaguapa | Feb 18, 2021 | Autoimmune Disease, General, hashimoto's, Patient centric
Next up on my content plan is a post about inspirational quotations. At first I thought this would be easy – the internet is after all full of inspirational quotes. However I wanted to make it meaningful and tie it back to life as an autoimmune patient. ...
by Pharmaguapa | Nov 12, 2020 | General, Patient centric, Social Media
Last week I read in an article that 72% of patients do not feel listened to by pharma. This is a very sorry state of affairs, but sadly does not surprise me. Whilst patients are the end users they are not seen as customers. Traditionally patients have not had a say...
