by Pharmaguapa | Feb 26, 2021 | Autoimmune Disease, General, hashimoto's, Patient centric, Rare disease, Social Media
It’s Rare Disease Day this weekend! Every year the end of February sees this day focused on rare diseases. The aim of the disease day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients’...
by Pharmaguapa | Feb 18, 2021 | Autoimmune Disease, General, hashimoto's, Patient centric
Next up on my content plan is a post about inspirational quotations. At first I thought this would be easy – the internet is after all full of inspirational quotes. However I wanted to make it meaningful and tie it back to life as an autoimmune patient. ...
by Pharmaguapa | Nov 12, 2020 | General, Patient centric, Social Media
Last week I read in an article that 72% of patients do not feel listened to by pharma. This is a very sorry state of affairs, but sadly does not surprise me. Whilst patients are the end users they are not seen as customers. Traditionally patients have not had a say...
by Pharmaguapa | Oct 10, 2020 | Autoimmune Disease, hashimoto's, Patient centric, Social Media
Today is world mental health day. I have been quite open about my own battles with mental health, a result of my Hashimoto’s. In fact I received the diagnosis for depression six months before they identified that it was actually a symptom of thyroid disease. ...
by Pharmaguapa | Sep 20, 2020 | Autoimmune Disease, hashimoto's, Patient centric, Social Media
I was on a call last week where I found myself giving input into a brand strategy not as strategy consultant but as a patient advocate. My day job is advising life science’s companies on how to engage with their customers using digital technology. This...
by Pharmaguapa | Jun 10, 2020 | Facebook, Patient centric, Social Media, Twitter
Why do we need to be social? More particularly why do we need to be on social media? As you may know I am a huge advocate for social media. It provided me a lifeline may years ago when I was terribly ill. There are a myriad of reasons why we need to be social and...
